A break from the Norm
nor·mal (nôr?m?l)
adjective
Conforming with or constituting an accepted standard, model, or pattern; esp., corresponding to the median or average of a large group in type, appearance, achievement, function, development, etc.; natural; usual; standard; regular
Oh to be normal, to look normal, to feel normal, to ooze normality. An odd request, maybe, and one which begs the question, “what IS ‘normal?” to which I can only answer, “not me.”
All my life I have felt segregate, especially at school – usually for reasons beyond my control: a different accent to my peers, a non-standard height, gay not straight – being a petite posh puff was no primary school picnic in the park! Being picked last for football became the norm, so much so that the act itself almost became more of a joke than I was. No amount of logical reasoning can counter the illogic of a mob of pre-pubescent peers and ‘pick on the poof’ was the preferred playground pastime. Too often those differences have been used against me, so maybe it is not unexpected that I would quite welcome the disappearance into the monotone of normality. Age and growing tolerance have improved things greatly of course. There has been a massive normalising of gay relationships for a start, and that is brilliant. That is evidence of how a perceived extreme has been absorbed into the mainstream, well, mostly absorbed – I think we are still a way off a time where David and I could kiss in Tescos without raising an eye – but there again, I don’t think it is necessarily right for anyone to be snogging by the Deli counter, as were a straight couple I saw the other day.
Our society has such a confused way of dealing with anything it sees as different; it is either ridiculed or revered, dreadful or desirable – sometimes both at the same time and maybe it is just fashion which dictates what is in vogue at any one time. Twenty years ago being a puff was akin to having leprosy but today we are the ‘must-have’ fashion accessory. No street is complete without its resident gay couple. We have become the token blacks. But that is a lot better than I ever dared dream would happen and I’m not complaining.
Maybe ‘normal’ is a somewhat utopian ideal, unattainable for a species as diverse as ours, which relies on mutation for development and praises those who break the mould. The Guinness Book of Records would hardly include “the most normal person in the UK” or list all the names of those “of most average height” – instead we hail the tallest, the shortest, the fastest, the thinnest (I can feel a song coming on here…) Survival of the fittest and the basic concepts of Darwinian adaptability means that some must be less fit and, to borrow from Mr Orwell, maybe it has to be that some animals are more equal than others. It isn’t normality that pushes at the edges of social, scientific or medical understanding. Frontiers are only explored by the exceptional. But it is still normality that I crave.
Many, I am sure, would think of ‘normal’ as boring, homogenised, lacking in diversity, individuality or creativity. The gay community, as a subset of humankind, is a great example of the conundrum we face – on one hand wanting the level playing field of equality and on the other, our desires to retain our separate identity. We want to be treated as normal people but still be different, ab-normal – after all, does ‘queer’ not mean ‘strange and unusual’? But we all judge ourselves against the concept of normal all the time; are we too fat, to thin, too tall, too short, too loud, too quiet, too active, too sedentary? Does my bum look big in this? Is my hair style fashionable? Am I behaving in an appropriate way? Do I fit in?
I’ve never regarded myself as anything other than a misfit; that tends to happen when you are significantly below average height, need glasses, and have hair that, if left unshaved, looks something akin to an explosion in a wire wool factory. I’m the next best thing to a hobbit, except they are generally cuter. I hide behind humour, proclaiming myself to be “unlanky” or “not really short, just further away than you think I am”. But I have always tried to take care of my body, after all it came with a non-exchange clause and, whilst some spare parts may be available, a whole body transplant remains the gift of Time Lords and I have yet to master the finer points of reincarnation (besides, I’d probably come back as Sylvester McCoy and Who’d want to do that?) So, one makes the most of the raw materials available, without falling foul of fanatical fashion or the need to buy enough male grooming products to keep Cliniqué in business for the next decade. I will never tread the path of the Adonis, the male model or ‘dreamboat’. I hold no aspirations of winning the Mr Universe competition, and, even if through some galactic irony, I did end up in the final alongside a Slitheen, Judoon, Sontaran and the inner squidgy bits of a Dalek, I’d settle for fifth place and the train fare home. If beauty really is in the eye of the beholder then I thank whatever higher force there may be that I fell for someone who is short-sighted, colour blind, has monocular vision and a lazy eye. But that said, I’m no troll either. I may have fallen out of the ugly tree but I managed to miss a few of the most severe branches on the way down.
I have such a tempestuous relationship with my body image, largely based on the prejudices of society against someone who doesn’t quite fit the standardised concept of ‘normal’ and I have talked at length in previous blog entries about the difficulty of finding clothes or shoes that fit. You learn to be less fussy when the choice is ‘this or nothing’ and any sense of a clothing ‘look’ I might have is based entirely on availability rather than design. There are a few exceptions to that rule and a couple of ‘outfits’ that I think DO suit me, but none of them fit me anymore and so I shuffle around in my scruffs.
One of the hardest things about the last 18 months has been seeing the changes to my body shape, and for two main reasons. Firstly, it has taken me even further away from the ‘body beautiful’ and that goal of fitting the norm, or even being ‘acceptable’ and secondly because it is such a visual, unequivocal representation of how Ill I have been. I’ve always tried to convince myself that looks don’t matter, but they do. People judge. People make snap decisions based on physical appearance. We all do it,
we’ve all made assumptions about a person because they tended towards a more extreme body shape. I read on the BBC site the other day a story about the growth and spread (pardon the choice of words) of ‘fattism’ and of overweight people being subjected to unprovoked physical and verbal attacks. But what is really frightening is when you make such negative judgements about yourself, when you don’t just hate your appearance, but you hate yourself for looking like that. The most terrifying thing for me, when I was in hospital last year, was not the being diagnosed with cancer, not the having months of horrible treatments ahead of me, not even the pain, but the first time I saw myself naked in a mirror. I had lost 40% of my body weight, dropping from ten stone to just under six. I looked like I had aged 30 years and someone had shrunk-wrapped my skin to my skeleton, in much the same way as you can buy supermarket joints of meat with plastic suctioned to every contour. Slap a bar-code on my bum and sell me as a Tescos Value Person. Flabby I was not. The cancer had been so advanced that it was using all my energy, all my fat and muscle reserves and more – my body was taking more than I could give it. The person looking back at me from that mirror was unrecognisable, an imposter – not me, not the face I had grown up with. The body in the reflection belonged to a third world, emaciated, starving, wretch. The hobbit had turned into Gollum. And that was more frightening than I can ever describe. I cried for nearly 12 hours solid. Because I didn’t want to be that person and I didn’t want the people I loved to have to look at him either.
I think that was the turning point for me, the point when I decided that I had better get better. I knew for sure that I didn’t want anyone’s last image of me to be the skeletal wraith I had become.
Getting back out among people I knew before has been really hard, and on more than one occasion I have bottled out, opting for the safety of a more reclusive stance; Gollum back in his cave. Sometimes that has been to try to protect others from seeing me in such a state but more often the motivation has been selfish, born of fear. The really good friends have been fine, supportive and kind. Family will love me regardless of how I look. But that only accounts for a handful of people and the challenge is dealing with the ones who see you and judge. The ones who make assumptions. The ones who whisper and point when they think you are not looking. I don’t blame them, it is human nature. I still find myself doing it to others almost without thinking and that is something I need to change.
I suppose we all have an inner desire to stand out from the crowd, but we want to do that on our own terms, based on traits, looks or accomplishments that we feel to be worthwhile and positive. We don’t want to stand out as objects of ridicule, but of praise. There is a fine line between gorgeous and gruesome. I think of people who have taken things just a bit too far and tipped the balance. That one extra facelift that saw the sea change from classic beauty to grotesque gargoyle, the body builder who went from muscle to monster.
I’m getting better, my body is slowly returning from horror to human, but there’s still a long way to go and I pine for the return of the shape I used to inhabit. And so ‘normal’ seems quite a desirable state to be in. Average would be wonderful. I could buy clothes in a range of styles. I could be unremarkable and un-remarked-upon, ordinary, usual, unostentatious.
When I was at school, one of the poems we studied for O’Level (yes I AM that old) was Philip Larkin’s “Born Yesterday” and it caused me some consternation as I couldn’t get my head around what exactly it meant. I understand now.
Born Yesterday
for Sally Amis
Tightly-folded bud,
I have wished you something
None of the others would:
Not the usual stuff
About being beautiful,
Or running off a spring
Of innocence and love -
They will all wish you that,
And should it prove possible,
Well, you’re a lucky girl.
But if it shouldn’t, then
May you be ordinary;
Have, like other women,
An average of talents:
Not ugly, not good-looking,
Nothing uncustomary
To pull you off your balance,
That, unworkable itself,
Stops all the rest from working.
In fact, may you be dull -
If that is what a skilled,
Vigilant, flexible,
Unemphasised, enthralled
Catching of happiness is called.
Posted: November 25th, 2009 by OberonUK | No Comments | Filed under Medical mayhem
I mention this, not only because Guy Fawkes Night is but a moon away, but also to note that Allen bypassed ‘the gentler tortours’ and went straight for the full barrage of agonizing instrumentation at his disposal. Now, you will have to remember, I was lying half naked on a bench with my face through a hole (breathing being the only luxury allowed), so could only rely on the sense of sound and touch to build up my picture of the events, and the fog of pain may have clouded my memory a little. I think there may have been a rack involved, although I seem no taller (bugger!). If there were thumbscrews, manacles or an iron maiden then I was passed out at that point and have no recollection, but I do remember several beatings and poundings over the weekend as my back was bashed, broddled, banged, battered and bruised with the intention of shifting my snaking spine from the graceful ‘S’ shape it has adopted back into the more conventional straight-line model favoured by most pain-free persons. He used a special machine which helps free the joints in the vertebrae through increasing pressure and vibration. According to the website (
I do Allen a disservice; he took great care of me and actually the treatment wasn’t half as bad as I had expected, although sitting on steel benches at the airport while our return flight was delayed for three hours was not the ideal after-care regime and I shall never tenderise a steak again!
Maybe my damning demeanour is a product of a disappointing and disastrous dalliance with fireworks in my tender years. Before I progress I must say, for legislative reasons, that no animals were harmed in the making of this anecdote although several children were emotionally scarred for life in scenes that some viewers may find upsetting.




